I’ve spent my life navigating cystic fibrosis alongside anxiety, OCD, and depression — struggles that once led me to numb everything with alcohol until a wake‑up call changed everything. Through ...

Raising my son with cystic fibrosis has been one of the hardest journeys of my life, but it also led to unexpected blessings — like community, purpose, and a life filled with gratitude.

Gene editing refers to the use of targeted molecular tools to make changes to specific DNA sequences inside cells. The most well-known example of a gene editing tool is CRISPR-Cas9. A major advantage ...

Winter was in full swing, and the air was sharp and crisp, with a very low wind chill. Walking across the parking lot dressed in full winter gear like I was preparing to climb Mount Everest, I felt ...

Born in 1987, growing up with cystic fibrosis… the future was a strange concept. Not because I didn’t dream about it. Not because I didn’t want it. Not because every movie or TV show I watched ...

JP is the vice president of clinical research for the Cystic Fibrosis Foundation and a professor of pediatric pulmonary medicine at Cincinnati Children's Hospital Medical Center. His role at the ...

Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

Katherine was diagnosed with CF as a baby. She has an older brother and had a younger sister who sadly lost her battle with CF in 2010. Katherine received a lung transplant in 2010 at age 18 and ...